Cloaca du jour 2,064 Posted May 31, 2018 https://www.cnn.com/2018/05/30/politics/right-to-try-donald-trump/index.html MAGA!!! Great Idea...regardless of affiliation. Curious to see what our resident MD's think Share this post Link to post Share on other sites
bandrus1 413 Posted May 31, 2018 I have read the criticism and dont agree with much of it... Only part I worry about if Dr's cleaning out patients bank accounts with false hope. But again it is their choice to make Share this post Link to post Share on other sites
cbfalcon 824 Posted May 31, 2018 I'd obviously need someone to educate me on the purported downsides.... but on the surface, it sounds like a no brainer and my reaction is to be happy Trump signed this. Share this post Link to post Share on other sites
Drizzay 645 Posted May 31, 2018 But is it really false hope if it is a last-ditched effort? The only issue I would see is if you get some kookie anti-western medicine type that is refusing legit treatment and wants some quackery. Share this post Link to post Share on other sites
TimmySmith 2,782 Posted May 31, 2018 I don't see any difference in philosophy with this or assisted suicide. Could be good, could be bad, but probably neither. Share this post Link to post Share on other sites
fandandy 3,311 Posted May 31, 2018 The issues will arise with children. Are parents now allowed to bypass traditional care altogether to go an alternative route or is this just last ditch effort stuff? I speak from ignorance since I have not followed this at all. Share this post Link to post Share on other sites
MDC 5,890 Posted May 31, 2018 I'd obviously need someone to educate me on the purported downsides.... but on the surface, it sounds like a no brainer and my reaction is to be happy Trump signed this. The only potential downside I see is patients in a desperate situation getting taken for a ride by snake oil salesmen but like you said, theyre dying anyway. I doubt this law has much affect either way. Share this post Link to post Share on other sites
cbfalcon 824 Posted May 31, 2018 The only potential downside I see is patients in a desperate situation getting taken for a ride by snake oil salesmen but like you said, theyre dying anyway. I doubt this law has much affect either way. The bill will give terminally ill patients the right to seek drug treatments that remain in clinical trials and "have passed Phase 1 of the Food and Drug Administration's approval process" but have not been fully approved by the FDA. I feel like the drug having to have passed Phase 1 takes care of that, as I assume snake oil salesmen don't get that fair.....at least i hope. Share this post Link to post Share on other sites
MDC 5,890 Posted May 31, 2018 I feel like the drug having to have passed Phase 1 takes care of that, as I assume snake oil salesmen don't get that fair.....at least i hope. Youre right, I shouldnt have said SOS. Really nothing obviously wrong with this move. Share this post Link to post Share on other sites
tikigods 76 Posted May 31, 2018 This is an example of why I'm glad Trump is President. It seems like a no brainer and if he was a right-winged religious zealot, he would have vetoed it. Also fock off Hillary. Share this post Link to post Share on other sites
Sho Nuff 719 Posted May 31, 2018 What did this do that wasnt already there? Remove the FDA (not fully)from the equation? I mean...calling it right to try sounds good...my opposition would be in that it seems to give big Pharma more power to push things. Share this post Link to post Share on other sites
tikigods 76 Posted May 31, 2018 it seems to give big Pharma more power to push things. and how is that a bad thing? These are the people investing time and money into creating life saving medications. Share this post Link to post Share on other sites
bandrus1 413 Posted May 31, 2018 and how is that a bad thing? These are the people investing time and money into creating life saving medications. I mean.. opioids are a rather large problem Share this post Link to post Share on other sites
tikigods 76 Posted May 31, 2018 I mean.. opioids are a rather large problem So you throw the baby out with the bathwater? Seems myopic to me especially when some people have small aged children facing terminal illnesses that could possibly be cured. But hey…opioids man. Shut big pharma down. Share this post Link to post Share on other sites
Sho Nuff 719 Posted May 31, 2018 and how is that a bad thing? These are the people investing time and money into creating life saving medications. It may not be...but it removes them from the final process and how much will be reported then to the FDA is a concern. https://www.cbsnews.com/news/right-to-try-bill-trump-signing-will-it-help-terminally-ill-patients-today-2018-05-30/ FDA apparently was already approving a large percentage of these... Share this post Link to post Share on other sites
iam90sbaby 2,125 Posted May 31, 2018 What did this do that wasnt already there? Remove the FDA (not fully)from the equation? I mean...calling it right to try sounds good...my opposition would be in that it seems to give big Pharma more power to push things. It may not be...but it removes them from the final process and how much will be reported then to the FDA is a concern. https://www.cbsnews.com/news/right-to-try-bill-trump-signing-will-it-help-terminally-ill-patients-today-2018-05-30/ FDA apparently was already approving a large percentage of these... Good God just shut the fock up. It was a good move, say it. Share this post Link to post Share on other sites
Sho Nuff 719 Posted May 31, 2018 Good God just shut the fock up. It was a good move, say it. Try reading dipshit...Im not fully sure it was a great move or even necessary given what was already in place. How about you admit you like it because Trump did it and dont know about any of it anyway. Share this post Link to post Share on other sites
iam90sbaby 2,125 Posted May 31, 2018 Try reading dipshit...Im not fully sure it was a great move or even necessary given what was already in place. How about you admit you like it because Trump did it and dont know ###### about any of it anyway. Okay so everyone one but you thinks that. You're just unbearable. You don't have to be an expert in each and every field to make a decision. Trump didn't do any medical school, so he shouldn't sign any laws or bills regarding the health field? Is that what you are saying? Share this post Link to post Share on other sites
Sho Nuff 719 Posted May 31, 2018 Okay so everyone one but you thinks that. You're just unbearable. You don't have to be an expert in each and every field to make a decision. Trump didn't do any medical school, so he shouldn't sign any laws or bills regarding the health field? Is that what you are saying? I dont think the word everyone means what you think it does.No...nowhere in my post does it even infer what your assertion of me is saying. Seriously...run along junior...your just being your usual jackass self. My posts were not controversial or even confrontational until you chimed in. Grow up. Share this post Link to post Share on other sites
iam90sbaby 2,125 Posted May 31, 2018 I dont think the word everyone means what you think it does. No...nowhere in my post does it even infer what your assertion of me is saying. Seriously...run along junior...your just being your usual jackass self. My posts were not controversial or even confrontational until you chimed in. Grow up. You want to downplay the decision simply because Trump is the one that signed the paper. Go fock yourself. Share this post Link to post Share on other sites
Sho Nuff 719 Posted May 31, 2018 You want to downplay the decision simply because Trump is the one that signed the paper. Go fock yourself. Not at all. I questioned whether it was needed and if it gives to much power to a group I already dont trust much in big Pharma. Did so without even talking about Trump. As usual, you jumped to react before really understanding or reading what was written. Sad and pathetic as always. Share this post Link to post Share on other sites
Mr. Hand 482 Posted May 31, 2018 I dont think the word everyone means what you think it does. No...nowhere in my post does it even infer what your assertion of me is saying. Seriously...run along junior...your just being your usual jackass self. My posts were not controversial or even confrontational until you chimed in. Grow up. Why are you so angry all the time? Share this post Link to post Share on other sites
titans&bucs&bearsohmy! 2,745 Posted May 31, 2018 I remember when my grandfather was diagnosed with pancreatic cancer. I was with him at one of the appointments. The doctors asked if he wanted to be in a trial. Apparently, they were trying very large doses of Celebrex on cancer patients. The hope that suddenly appeared in his face damn near broke my heart. I actually had to leave the room for a minute. He had talked about trying to visit Europe with the time he had left. That was a dream of his. Dad was gonna go with and push him around in a chair. But he chose to do this trial instead. As I recall, the drug ended up having some rather unpleasant side effects down the road, but by then, he was on a pain med pump and barely there anyway. On this bill... I imagine it will have negative impact in a few cases, positive impact in a few, and no impact at all in most. But yeah, I dont have a problem with people trying whatever they want to try. I dont see it as the governments place to police that. I hope some safeguards are in place to keep people from Being used as lab rats. But all in all, fine. Share this post Link to post Share on other sites
parrot 789 Posted May 31, 2018 I feel like the drug having to have passed Phase 1 takes care of that, as I assume snake oil salesmen don't get that fair.....at least i hope. My understanding is that Phase 1 basically just tests the safety of a medicine, not whether it is effective or not. So snake oil could conceivably pass Phase 1. Share this post Link to post Share on other sites
lickin_starfish 1,480 Posted May 31, 2018 Why are you so angry all the time? Because Hillary lost and his puzzy hat makes his head itchy. 1 Share this post Link to post Share on other sites
Cloaca du jour 2,064 Posted May 31, 2018 What did this do that wasnt already there? Remove the FDA (not fully)from the equation? I mean...calling it right to try sounds good...my opposition would be in that it seems to give big Pharma more power to push things. Twrminal Brain Cancer...promising drug may save you. But no...big gubment says no. Your dead in six months neway...what does it hurt to try? Get some common sense. The gubment doesnt have to do everything for you. Share this post Link to post Share on other sites
vuduchile 1,941 Posted May 31, 2018 Its a moot point for most people anyway. Insurance companies will never cover these drugs, so few will be able to afford them. Share this post Link to post Share on other sites
titans&bucs&bearsohmy! 2,745 Posted May 31, 2018 Its a moot point for most people anyway. Insurance companies will never cover these drugs, so few will be able to afford them. I imagine in some cases the drugs will be free, as part of a trial kind of thing. Isnt that how clinical trials often work? Share this post Link to post Share on other sites
Cloaca du jour 2,064 Posted May 31, 2018 Yes...free trials...sometimes they pay you. Read firestarter by stephen king... Share this post Link to post Share on other sites
Frozenbeernuts 1,652 Posted May 31, 2018 Yes...free trials...sometimes they pay you. Read firestarter by stephen king... Dont you tell me what to do!! I am reading 11/22/63 by Stephen King right now. I only read at break and lunch, so its taking a while. I'm going to need a new book after this one. Share this post Link to post Share on other sites
iam90sbaby 2,125 Posted May 31, 2018 Dont you tell me what to do!! I am reading 11/22/63 by Stephen King right now. I only read at break and lunch, so its taking a while. I'm going to need a new book after this one. Such a good read. How far along are you? Share this post Link to post Share on other sites
bandrus1 413 Posted May 31, 2018 So you throw the baby out with the bathwater? Seems myopic to me especially when some people have small aged children facing terminal illnesses that could possibly be cured. But hey…opioids man. Shut big pharma down. well that was an over reaction... nicely done Share this post Link to post Share on other sites
vuduchile 1,941 Posted May 31, 2018 I imagine in some cases the drugs will be free, as part of a trial kind of thing. Isnt that how clinical trials often work? Im confused. I thought clinical trials were already a thing and this new ACT was something different??? Share this post Link to post Share on other sites
Sho Nuff 719 Posted May 31, 2018 Twrminal Brain Cancer...promising drug may save you. But no...big gubment says no. Your dead in six months neway...what does it hurt to try? Get some common sense. The gubment doesnt have to do everything for you. FDA approves most of these...look at the link I provided. Share this post Link to post Share on other sites
LOD01 190 Posted May 31, 2018 So you throw the baby out with the bathwater? Seems myopic to me especially when some people have small aged children facing terminal illnesses that could possibly be cured. But heyopioids man. Shut big pharma down. Opioid Man. I like it. I may create that ID over at the shithole. Share this post Link to post Share on other sites
LOD01 190 Posted May 31, 2018 What this country really needs is Right To Checkout. I think only the state of Washington let's ya. Share this post Link to post Share on other sites
The PosterFormerlyKnownAs 61 Posted May 31, 2018 I have to admit, I thought the right to try act was going to be a response to the MeToo movement. But as outlined here, it makes sense. Share this post Link to post Share on other sites
Mike Honcho 4,028 Posted May 31, 2018 Okay so everyone one but you thinks that. You're just unbearable. You don't have to be an expert in each and every field to make a decision. Trump didn't do any medical school, so he shouldn't sign any laws or bills regarding the health field? Is that what you are saying? Groups opposed to Right to Try: American Cancer Society Cancer Action Network American Lung Association American Society of Clinical Oncology Asbestos Disease Awareness Organization Breast Cancer Action Bridge the Gap -SYNGAP Education and Research Foundation Chloe's Fight Rare Disease Foundation Congenital Hyperinsulinism International Cystic Fibrosis Foundation Disability Rights Legal Center Dyskeratosis Congenita Outreach, Inc. Fight Colorectal Cancer FORCE: Facing Our Risk of Cancer Empowered Friedreich's Ataxia Research Alliance Friends of Cancer Research International Myeloma Foundation International Society for Stem Cell Research The Leukemia & Lymphoma Society Lung Cancer Alliance LUNGevity Foundation M-CM Network MLD Foundation Moebius Syndrome Foundation Myotonic Dystrophy Foundation National Brain Tumor Society National Consumers League National Health Council National Organization for Rare Disorders (NORD) National Patient Advocate Foundation Oncology Nursing Society The Prevent Cancer Foundation PSC Partners Seeking a Cure Pulmonary Fibrosis Foundation Susan G. Komen TargetCancer Foundation United Mitochondrial Disease Foundation VHL Alliance Wilkins Parkinson’s Foundation Share this post Link to post Share on other sites
Frozenbeernuts 1,652 Posted May 31, 2018 Such a good read. How far along are you? Spoiler alert Sadie just had her reconstructive surgery and George met with De Morehnshildt to see if he was involved in the assassination attempt on the general. I have been reading this book over the course of a year since I took a bunch of time off from reading it. I wish I was better at remembering shlt so I could remember the tie ins from all the King books I have read Share this post Link to post Share on other sites
iam90sbaby 2,125 Posted May 31, 2018 Spoiler alert Sadie just had her reconstructive surgery and George met with De Morehnshildt to see if he was involved in the assassination attempt on the general. I have been reading this book over the course of a year since I took a bunch of time off from reading it. I wish I was better at remembering shlt so I could remember the tie ins from all the King books I have read I got really really sad when I finished that book. I knew I'd never read anything like it again. I personally think it is King's best. Share this post Link to post Share on other sites
