IndyColtsFan 325 Posted August 7, 2024 48 minutes ago, jerryskids said: Update! Had scans today for the first time in 4 months, still essentially all clear. We met our new oncologist today, as my previous one retired recently. He said something which is how I've felt for some time, which was basically the following: "we don't call people in your situation 'cured' because we've never had that historically. But, it seems that some people are being cured by these new (in my case, Keytruda) treatments." We also moved the next scans out to 6 months, so February ish. That's extra cool because it seems every year I have scans in December and it stresses me out to go into Christmas with bad news. I'll never be called cured, see above, but I'm feeling pretty dang good today. Kick ass, man! Great news! 1 2 Share this post Link to post Share on other sites
jerryskids 6,442 Posted August 7, 2024 28 minutes ago, Strike said: Yeah, I've never heard of a cancer patient referred to as cured. It's always "in remission." Glad to hear all is still well. Had my cancer not metastasized, it would likely be considered cured at this point. Once it metastasizes though, it's (historically) never considered as such. It is when, not if, it will come back to kill you. Which is why this is potentially new territory, as my onc said. Share this post Link to post Share on other sites
patweisers44 790 Posted August 7, 2024 Awesome news "skids ! No excuses next yesr in Edex Cup. Share this post Link to post Share on other sites
DonS 3,289 Posted August 7, 2024 Congrats my throat cancer Eskimo brother! Share this post Link to post Share on other sites
bostonlager 2,664 Posted August 7, 2024 Good to hear, Jerry. I look forward to taking more of your EdEx money for many years to come. Share this post Link to post Share on other sites
supermike80 1,756 Posted August 7, 2024 LOOOOKKKKK ATTTTT MEEEEEE!!!!! Just kidding man...great news. Hope the continued progress continues!! Share this post Link to post Share on other sites
jerryskids 6,442 Posted Tuesday at 10:50 PM Update... not great. I had my first scans in 6 months a few weeks ago, and for the first time in 3.5 years, there is a new nodule in my lung. Well, apparently not new, as there is evidence of it in my prior August and April scans, but it was too small to register. It's still small, 6 mm, so too small to biopsy or to see on a PET scan (needs to be 10 mm to reliably see). Given my history, and because there is just the one nodule, we've decided to have it surgically removed. Benefits of this is that it will definitely be removed (with chemo, immuno, and/or radiation, you never really know), and they will biopsy it while I'm still out on the table, so we'll know if it is cancer. It's less clear to me if they can conclude it is from my past metastasis, or if it might be some unrelated, less-threatening thing like an adenocarcinoma. Surgery is on Tuesday, 4/8. Because it requires collapsing my lung temporarily, they want to keep me overnight. Ending on a positive note, there are a few things in my favor. One, it is reassuring to have a plan. Two, in addition to the above adenocarcinoma, it could be benign. For instance, I occasionally aspirate (fancy for leak) food and drink from my esophagus into my trachea (and thus my lungs). If a particulate settled somewhere, my body might build a nodule around it. Given it's growth over the past year, unlikely, but maybe. Three, it's in my right lung, whereas my past tumors (lung and throat) were all on my left side. The lungs are interconnected via the trachea so the doc doesn't put much credibility in it, but the engineer in me finds it odd that there would be a single dormant nodule on the other side. Four, speaking of dormant, my original cancer (squamous cell carcinoma) is typically like a yip yip dog -- supposedly it either grows like a week and kills ya quick, or you kill it first. It's not like some breast cancers that lie dormant for a decade or more. Relatedly, it grew very fast the first time around, whereas this growth has been much slower. Five, I've never smoked and I exercise regularly, so my lungs are as awesome as 57 yr old lungs can be. The surgery is Masters week, so for my EdEx buddies, I'll probably have to come up with a plan to finish the draft (hopefully we can make my part of the 3-4 turn on Monday). I also have not only approval but insistence from my wife that I sit on my ass recovering and watch the tourney all weekend. Anyway, that's it for now, I'll update things after the surgery. 4 2 Share this post Link to post Share on other sites
Alias Detective 1,376 Posted Tuesday at 10:54 PM Keep on keeping on. You are an inspiration to many. . 2 Share this post Link to post Share on other sites
shadrap 204 Posted Tuesday at 11:06 PM Good luck & keep the good attitude! Share this post Link to post Share on other sites
Hardcore troubadour 14,715 Posted Tuesday at 11:07 PM Toughest guy in this cesspool. Best of luck. 1 Share this post Link to post Share on other sites
MDC 6,939 Posted Tuesday at 11:13 PM Best of luck brother. 1 Share this post Link to post Share on other sites
wiffleball 4,777 Posted Tuesday at 11:17 PM TLDR. So, you got a little dog ? Hang tight. Sounds like you have this thing locked down. But wouldn't expect anything less from you & your amazing support team. GB. In my prayers. Share this post Link to post Share on other sites
BiffTannen 819 Posted Tuesday at 11:18 PM All the best to you, buddy. through it all you’re planning your EdEx draft . That’s why we love you 1 Share this post Link to post Share on other sites
Fnord 1,943 Posted Tuesday at 11:32 PM Best wishes, Jerry. Fuk cancer. Share this post Link to post Share on other sites
Voltaire 5,121 Posted Tuesday at 11:33 PM Less 'not so great' than I feared when I opened the thread. There's a high chance this is nothing and your streak of cancer-free months continues. Maybe upwards of 70%. If it isn't, that means you're not actually out of the woods after all which is the worst of it. Its still there. But this particular nodule seems easily handled. You've been through and dealt with much worse. Share this post Link to post Share on other sites
TheNewGirl 1,303 Posted Tuesday at 11:36 PM Thinking of you and your family, jerry. 1 Share this post Link to post Share on other sites
jerryskids 6,442 Posted Tuesday at 11:38 PM Somebody posted a laugh emoji on my update. 2 Share this post Link to post Share on other sites
jerryskids 6,442 Posted Tuesday at 11:46 PM 5 minutes ago, Voltaire said: Less 'not so great' than I feared when I opened the thread. There's a high chance this is nothing and your streak of cancer-free months continues. Maybe upwards of 70%. If it isn't, that means you're not actually out of the woods after all which is the worst of it. Its still there. But this particular nodule seems easily handled. You've been through and dealt with much worse. I appreciate the percentages, but in reality I'm likely wishcasting. Occam's Razor says it is my old buddy back for more fun. One thing I didn't say, since I had typed too much already, is that my immunotherapy treatments ended in fall 2023. This nodule first showed up in scans April 2024. One might conclude that the immuno had not killed it but rather kept it in check, and once the immuno ended, it started growing. This isn't necessarily a bad thing -- if it was just this one stubborn tumor, the surgery definitively gets rid of it. Either way, I expect I'll get back on a 3 month scan schedule (vs. 6 months) after the surgery. If other things pop up, I'll probably end up back on the chemo/immuno plan. It's been a while since chemo so that would be fine. As my wife says, we just need to keep me alive long enough for advancements in areas like targeted therapies to be available. Share this post Link to post Share on other sites
Tebok 172 Posted Tuesday at 11:49 PM 58 minutes ago, jerryskids said: Update... not great. I had my first scans in 6 months a few weeks ago, and for the first time in 3.5 years, there is a new nodule in my lung. Well, apparently not new, as there is evidence of it in my prior August and April scans, but it was too small to register. It's still small, 6 mm, so too small to biopsy or to see on a PET scan (needs to be 10 mm to reliably see). Given my history, and because there is just the one nodule, we've decided to have it surgically removed. Benefits of this is that it will definitely be removed (with chemo, immuno, and/or radiation, you never really know), and they will biopsy it while I'm still out on the table, so we'll know if it is cancer. It's less clear to me if they can conclude it is from my past metastasis, or if it might be some unrelated, less-threatening thing like an adenocarcinoma. Surgery is on Tuesday, 4/8. Because it requires collapsing my lung temporarily, they want to keep me overnight. Ending on a positive note, there are a few things in my favor. One, it is reassuring to have a plan. Two, in addition to the above adenocarcinoma, it could be benign. For instance, I occasionally aspirate (fancy for leak) food and drink from my esophagus into my trachea (and thus my lungs). If a particulate settled somewhere, my body might build a nodule around it. Given it's growth over the past year, unlikely, but maybe. Three, it's in my right lung, whereas my past tumors (lung and throat) were all on my left side. The lungs are interconnected via the trachea so the doc doesn't put much credibility in it, but the engineer in me finds it odd that there would be a single dormant nodule on the other side. Four, speaking of dormant, my original cancer (squamous cell carcinoma) is typically like a yip yip dog -- supposedly it either grows like a week and kills ya quick, or you kill it first. It's not like some breast cancers that lie dormant for a decade or more. Relatedly, it grew very fast the first time around, whereas this growth has been much slower. Five, I've never smoked and I exercise regularly, so my lungs are as awesome as 57 yr old lungs can be. The surgery is Masters week, so for my EdEx buddies, I'll probably have to come up with a plan to finish the draft (hopefully we can make my part of the 3-4 turn on Monday). I also have not only approval but insistence from my wife that I sit on my ass recovering and watch the tourney all weekend. Anyway, that's it for now, I'll update things after the surgery. Damn, you deserve a forever break from this stuff, but your courage and positive mindset is inspiring. Share this post Link to post Share on other sites
jerryskids 6,442 Posted Tuesday at 11:50 PM 28 minutes ago, BiffTannen said: All the best to you, buddy. through it all you’re planning your EdEx draft . That’s why we love you Dood, you should have seen us trying to find a date. The surgeon offered 3/27, we originally signed up but... wait, that's opening day for the DBacks, we never miss that, so I rescheduled. We moved it to 4/1, but my wife has some super important corporate meetings that day and the next. I pushed back on 4/8 because it would impact the draft, but since she's working and I'm retired, I reluctantly acquiesced. Priorities and all. In the giant scheme of things, 1.5 weeks won't matter for this procedure. Share this post Link to post Share on other sites
RaiderHaters Revenge 4,192 Posted Tuesday at 11:53 PM Damn Jerry sorry to hear brother. Let me know if you need anything. Share this post Link to post Share on other sites
Ron_Artest 970 Posted Tuesday at 11:57 PM Wishing you the best Jerry. 1 Share this post Link to post Share on other sites
Strike 5,055 Posted Tuesday at 11:59 PM Thanks for the update. Bummed to hear it's not as optimistic as the last few. As always, hoping for the best. Share this post Link to post Share on other sites
patweisers44 790 Posted Tuesday at 11:59 PM 'Skids, you are one of the good guys here. Wishing you nothing but the best in your continued battle. 1 Share this post Link to post Share on other sites
WhiteWonder 2,636 Posted Wednesday at 12:14 AM 3 hours ago, jerryskids said: Somebody posted a laugh emoji on my update. this made me laugh... not the update, but your comment about someone laughing sorry to hear, hoping the engineer in you is right regarding why would one pop up on the other side. You got this 1 Share this post Link to post Share on other sites
jerryskids 6,442 Posted Wednesday at 12:40 AM 44 minutes ago, RaiderHaters Revenge said: Damn Jerry sorry to hear brother. Let me know if you need anything. Will do, thanks. Share this post Link to post Share on other sites
Frozenbeernuts 2,014 Posted Wednesday at 12:41 AM Have you gone to any healers at all? I would start doing all the woo woo stuff. Past life regression, raki, stem cell healers. Vibration bowls. Meditation. Glad to hear it's not too serious as of now. Share this post Link to post Share on other sites
Reality 3,071 Posted Wednesday at 12:43 AM Damn, good luck man. Share this post Link to post Share on other sites
thegeneral 2,785 Posted Wednesday at 01:22 AM Very sorry to hear this…you’ve got your plan and you’ve got some good docs. Best of luck beating this. Share this post Link to post Share on other sites
SUXBNME 1,448 Posted Wednesday at 01:28 AM My couch is always open for you, my frined 1 Share this post Link to post Share on other sites
MLCKAA 535 Posted Wednesday at 01:29 AM Damn. You are one tough nut brother. Share this post Link to post Share on other sites
KSB2424 3,141 Posted Wednesday at 01:35 AM So you're saying there is a chance I can get back in the EdEx? Just kidding Jerry, you are one of the Geeks here why I keep coming back and checking in. HT said it best. "Toughest guy in this cesspool. Best of luck." 1 Share this post Link to post Share on other sites
Strike 5,055 Posted Wednesday at 02:23 AM 55 minutes ago, SUXBNME said: My couch is always open for you, my frined Damn, I thought you like Jerry. 1 Share this post Link to post Share on other sites
Gepetto 1,252 Posted Wednesday at 02:28 AM 1 hour ago, Frozenbeernuts said: Have you gone to any healers at all? I would start doing all the woo woo stuff. Past life regression, raki, stem cell healers. Vibration bowls. Meditation. Glad to hear it's not too serious as of now. 1 Share this post Link to post Share on other sites
Gepetto 1,252 Posted Wednesday at 02:29 AM Sorry to hear this for you, but surgery, etc. sounds promising. I hope all goes well and you are (or become) cancer free. Share this post Link to post Share on other sites
Bier Meister 1,632 Posted Wednesday at 02:39 AM Continued thoughts bud Share this post Link to post Share on other sites
HellToupee 1,484 Posted Wednesday at 02:56 AM Holy hell sorry to hear this. We’re all behind you, . Stay strong and please keep us updated Share this post Link to post Share on other sites
shorepatrol 1,866 Posted Wednesday at 03:13 AM You are still trached correct? Aspiration is not good my man. Have they done a swallow test? Share this post Link to post Share on other sites
BunnysBastatrds 2,223 Posted Wednesday at 06:01 AM Glad to hear you’re being positive all of this. After they found three growths in me after the MRI,Pancas, and lower intestine, they want me to come back April for another round of testing so see their progression. You’re an inspiration to me and all.I thank you for it. You got this brother. Share this post Link to post Share on other sites