MLCKAA 401 Posted April 9 My wife (34C) has a terminal illness of an autoimmune variety. When she was first diagnosed in 2013 I always thought “terminal” meant “Ya dyin’ next week” but they use it to refer to any illness that will measurably shorten your life expectancy. So, she’s been in remission since 2014 and has done great. But she’s no longer in remission as of today. I’ve known all this time that it would happen and that we’d have to face hospitalization and treatment again, but I’ve been lying to myself about it. Feeling devastated. 2 Share this post Link to post Share on other sites
jonmx 1,596 Posted April 9 So terrible. There are no words that could possibly help. Prayers for your wife. Stay strong for her. Share this post Link to post Share on other sites
Maximum Overkill 652 Posted April 9 I can't even imagine your pain. My thoughts and prayers are with you and your family. Tell her everything you ever wanted to tell her. Share this post Link to post Share on other sites
MDC 5,895 Posted April 9 Really sorry to hear that for you, your wife and family. Share this post Link to post Share on other sites
Hardcore troubadour 12,664 Posted April 9 Sorry man. I don’t know much about her condition, but there have been incredible strides made in the last decade concerning illnesses. And you are in the country with the best medical care in the world. All the best. Share this post Link to post Share on other sites
TheNewGirl 1,031 Posted April 9 Oh man. I am so sorry to hear this. Thinking of you, her, and your family. Sending ((hugs)). Share this post Link to post Share on other sites
TheNewGirl 1,031 Posted April 9 5 minutes ago, GobbleDog said: Can size? It's in the post, numbnuts. 3 Share this post Link to post Share on other sites
RaiderHaters Revenge 3,594 Posted April 9 33 minutes ago, MLCKAA said: My wife (34C) has a terminal illness of an autoimmune variety. When she was first diagnosed in 2013 I always thought “terminal” meant “Ya dyin’ next week” but they use it to refer to any illness that will measurably shorten your life expectancy. So, she’s been in remission since 2014 and has done great. But she’s no longer in remission as of today. I’ve known all this time that it would happen and that we’d have to face hospitalization and treatment again, but I’ve been lying to myself about it. Feeling devastated. Cancer? Vascilitis? Sorry brother. Let me know if she needs FECO. You can dm me or ask freely here Share this post Link to post Share on other sites
Mike Honcho 4,039 Posted April 9 My deepest sympathies to you and the rest of your family. Share this post Link to post Share on other sites
Gladiators 1,904 Posted April 9 Sorry to hear this. I hope treatment works again and you have many more years together. Stay strong. Share this post Link to post Share on other sites
Fnord 1,141 Posted April 9 THAT SUX. Best of luck to both of you, stay positive and try to remember to appreciate the blessings you do have. Share this post Link to post Share on other sites
Fireballer 2,385 Posted April 9 45 minutes ago, MLCKAA said: My wife (34C) has a terminal illness of an autoimmune variety. When she was first diagnosed in 2013 I always thought “terminal” meant “Ya dyin’ next week” but they use it to refer to any illness that will measurably shorten your life expectancy. So, she’s been in remission since 2014 and has done great. But she’s no longer in remission as of today. I’ve known all this time that it would happen and that we’d have to face hospitalization and treatment again, but I’ve been lying to myself about it. Feeling devastated. Hoping for the best, man. On a side note, was it you that posted a while back about divorcing after a long marriage? Sorry if I’m mistaken. Share this post Link to post Share on other sites
wiffleball 4,647 Posted April 9 Ah man, that sucks. Will drop a prayer for you & her. Please keep us posted. , Share this post Link to post Share on other sites
The PosterFormerlyKnownAs 61 Posted April 9 Sending healing mercies. Share this post Link to post Share on other sites
Strike 3,981 Posted April 9 Sorry to hear man. Hoping for the best outcome. Share this post Link to post Share on other sites
Bier Meister 1,514 Posted April 9 very sorry to hear. my thoughts. Share this post Link to post Share on other sites
Alias Detective 1,179 Posted April 10 Sorry to hear. Share this post Link to post Share on other sites
bostonlager 2,465 Posted April 10 Sorry to hear, buddy. I hope for the best. Share this post Link to post Share on other sites
MLCKAA 401 Posted April 10 1 hour ago, RaiderHaters Revenge said: Cancer? Vascilitis? Sorry brother. Let me know if she needs FECO. You can dm me or ask freely here It’s a blood disorder. Not cancer, but treated by the same hematologists and oncologists. The sh*t thing is how she has gone from just-fine to full-blown re-emergence in just 24 hours. 4 Share this post Link to post Share on other sites
BunnysBastatrds 1,921 Posted April 10 God Damnt! Cancer fawking sucks. Hang in there man. Thoughts and prayers my brother. Think positive when you’re feeling down. Share this post Link to post Share on other sites
Dozer FBG 246 Posted April 10 Stay strong, man. Really sorry to hear… Share this post Link to post Share on other sites
DonS 3,067 Posted April 10 Damn. Sorry to hear this. Stay strong for her. Share this post Link to post Share on other sites
cmh6476 757 Posted April 10 Aw damn, no words other than sorry Share this post Link to post Share on other sites
IGotWorms 3,317 Posted April 10 Damn dude, sorry to hear that Hoping for the best Share this post Link to post Share on other sites
kutulu 1,551 Posted April 10 So sorry for you and your honey Share this post Link to post Share on other sites
Nomad99 411 Posted April 10 Wish the best for you & yours Share this post Link to post Share on other sites
peenie 1,691 Posted April 10 So sorry ! Maybe with treatment it will go any again? Wishing you both strength and resilience. ((Hug)) 1 Share this post Link to post Share on other sites
Pimpadeaux 2,271 Posted April 10 So sorry to hear this, bro. What's the virus name? Share this post Link to post Share on other sites
BeenHereBefore 1,336 Posted April 10 Very sorry to hear and prayers sent. Share this post Link to post Share on other sites
edjr 5,569 Posted April 10 11 hours ago, Bier Meister said: very sorry to hear. my thoughts. we are always sorry to hear your thoughts 2 Share this post Link to post Share on other sites
MLCKAA 401 Posted April 10 15 hours ago, Pimpadeaux said: So sorry to hear this, bro. What's the virus name? Not a virus. Autoimmune disorder. In a nutshell, her immune system is making antibodies that are killing her platelets. Right now she has 6 large purple bruises, hundreds of petechial hemorrhages and bleeding gums/hard palate. Sounds worse than it is. Starting first-stage pharmaceuticals already today, hopefully avoiding internal bleeding. Excellent medical system we have! Share this post Link to post Share on other sites
jerryskids 5,212 Posted April 10 I am so, so sorry to hear. My heartfelt prayers are out for you, your wife, and your family. If you ever want to chat feel free to PM me. 1 Share this post Link to post Share on other sites
Voltaire 4,564 Posted April 10 Repeating everyone eles. Sorry to hear MLCKAA. I can only begin to imagine the stress and upheaval. 2 Share this post Link to post Share on other sites
MLCKAA 401 Posted April 17 Following up my LOOK AT ME post with a little LOOK AT MEEEEEEEE… Wifey’s doing pretty well. First line med has improved her bloodwork results considerably. Follow-up labs tomorrow to check numbers again. The improvement was expected. The real test will be in the following 1-2 weeks to see if they maintain or drop right back down. The nice thing here is that the hematologist has told us that if she doesn’t improve and maintain, he’s going right to the miracle drug. No fkking around. Just wants to try this first-line so that the miracle drug can be reserved for the future in case sh*t ever gets completely sideways. Apparently, with her disorder, there’s data that some patients only respond to a treatment once and then it’s never effective for them again. 11 Share this post Link to post Share on other sites
BeachGuy23 512 Posted April 17 43 minutes ago, MLCKAA said: Following up my LOOK AT ME post with a little LOOK AT MEEEEEEEE… Wifey’s doing pretty well. First line med has improved her bloodwork results considerably. Follow-up labs tomorrow to check numbers again. The improvement was expected. The real test will be in the following 1-2 weeks to see if they maintain or drop right back down. The nice thing here is that the hematologist has told us that if she doesn’t improve and maintain, he’s going right to the miracle drug. No fkking around. Just wants to try this first-line so that the miracle drug can be reserved for the future in case sh*t ever gets completely sideways. Apparently, with her disorder, there’s data that some patients only respond to a treatment once and then it’s never effective for them again. Thanks for the update boyo. It seems you and your wife have a great attitude to fight this thing as long as possible. Good thoughts and prayers headed your wife's way. Share this post Link to post Share on other sites
Voltaire 4,564 Posted April 17 1 hour ago, MLCKAA said: Following up my LOOK AT ME post with a little LOOK AT MEEEEEEEE… Wifey’s doing pretty well. First line med has improved her bloodwork results considerably. Follow-up labs tomorrow to check numbers again. The improvement was expected. The real test will be in the following 1-2 weeks to see if they maintain or drop right back down. The nice thing here is that the hematologist has told us that if she doesn’t improve and maintain, he’s going right to the miracle drug. No fkking around. Just wants to try this first-line so that the miracle drug can be reserved for the future in case sh*t ever gets completely sideways. Apparently, with her disorder, there’s data that some patients only respond to a treatment once and then it’s never effective for them again. Hopefully she keeps doing well with the improvement and maintaining in these next couple of weeks. Its nice to know that there is a miracle drug in the "break in case of emergency" caes and it's not being used yet, so its not time to give up yet. 1 Share this post Link to post Share on other sites
